Last weekend was a busy one. Danny, Myself and Morgan
traveled up to the School for the Deaf and Blind in Ogden for the Parent's
Conference for the Parent Infant Program for the Blind and Visually Impaired. Kyle
got to experience his very first sleepover at his cousin's house. I was a
little worried about how well Morgan would handle the short trip but she did
surprisingly well.
At the Conference, we listened to speakers, participated in
workshops and learned more about CVI (Cortical Visual Impairment). This helps
so much with Morgan, giving us a better understanding of how CVI works and the
different ways we can help our Little Ball of Worry. We came away with a lot of
information and ideas. My head has been buzzing with all the information.
Mulling over everything they discussed and how it applies to Morgan.
We were in good company. Parents like ourselves figuring
this out. There were a few other parents like us dealing with medically complex
children where vision is only one piece of the puzzle.
Odd. But sometimes I envy parents who have only ONE
condition to contend with. I know I shouldn't but I can't help it. Not that their
situation is in any way less profound or life altering. Just different, and
from my point of view, maybe a little less complicated.
At the conference, I got some great ideas for toys and
sensory exploration. I took photos of some of the ideas and created for Morgan,
with Kyle's help, a sensory board for Christmas when I got home.
I have so much to learn and even as I learn, Morgan is
changing. This conference was a nice little break from our usual routine. I'm
grateful to the Parent Infant Program for providing us the opportunity to attend.
It was a great experience.