I love to write and have been writing since childhood. It all started with story-like letters written to a friend (I'm flattered to know that she has saved the letters through all these years). I won't claim that I'm any good. I can't compare myself to any writers I admire. I love to write though. And for anyone who reads this blog, I hope you can find some enjoyment in it. But I also want you to know that I'm not writing this only for you. I'm writing this mostly for myself. This blog as an outlet for the many thoughts, inspirations and doubts that seem to flow through me on a daily basis. Many of which arose with the birth and diagnoses of my daughter, Morgan. You can read her diagnoses story here.
My world is irreversibly shaken and I'm doing all I can to keep a firm hold of myself as I travel this journey that my beautiful girl has started me on. Started us on. Danny and I have talked for a long time about the pros and cons of letting people know about what Morgan has. His take on it is that people will automatically put her into a different category without even seeing what she is capable of. And at some level, I agree with him. There is a stigma that comes with the kind of thing we are dealing with. I've begun to experience that and know there will be more rough moments in the future. But I also want to give people a chance. Family, friends and strangers. Give people a chance to show tolerance, kindness and empathy. Danny reminds me all the time, when I tell him how frustrated I am by people's lack of understanding, that they are just on the outside looking in. That they only see little glimpses of what's going on. And it is hard to come to any kind of true understanding from that.
So here is a window, for anyone reading this, to peer through. Here are some stories and writings; parts of us laid bare for my own strange therapeutic need to express the strange and unfamiliar road that I'm on. Here is a window into our lives and sometimes into my own heart. Read with care.