My beautiful daughter, my Little Ball of Worry, has many
specialists. The list, thus far, has consisted of a Neurologist,
Ophthalmologist, Immunologist, Cardiologist, Pulmonologist and a Geneticist.
Not to mention the Neonatologist from when she was first born. She has had
countless appointments with these specialists. All critical in handling her
diverse number of medical issues and concerns. Morgan is not yet two years old
and we've run quite the gambit of medical stresses. It's no wonder why I call
her my Little Ball of Worry.
To back up a bit. I want you to know how incredible my
daughter is. How exquisitely beautiful she is. There are moments with her that
pull me closer to the wonders and mysteries of this world. I look into her eyes
and I see such depth and beauty. Looking into those eyes gives me the
determination to walk this path and to do so with my head held high and
straight spine.
Also, she is strong. I don't mean strong as in she can lift
very heavy objects for her age, or that she can outmatch her peers in endurance
or physical prowess. She can do neither. She is delayed in every way. She
struggles with the simple things and milestones which you and I take for
granted.
By saying she is strong, I mean she is the most determined
little human being I've ever encountered. The things which she endures without
complaint boggles the mind. She has defied all odds and continues to surprise
and baffle both me and the medical community. She is determined to be here with
us. She is determined to live. She is moving forward one inch at a time. And
I'm in awe of her.
Each specialist in Morgan's life serves a critical purpose
in her health and well being. Not just her health for today but to increase the
her chances for the best future possible.
She also has a few therapists helping her with her vision,
gross motor development, fine motor development as well as orientation
management (this has to do with her vision impairment and moving safely through
space).
Not to mention her Pediatrician who has done an amazing job
of putting it all together and tracking the different elements of her care and
Morgan's overall health.
All-in-all, Morgan has quite the team. And I couldn't do
what I do without any of them. Each Specialist, Doctor and Therapist addresses
a different need and each contributes to the information and knowledge I need
to be able to care for Morgan.
And even I, with the lifelong mantra of "I can do it
myself," admits that I can't do this alone.
But I must remember that I'm just as essential to Morgan's
well-being. To not forget my own importance. I must remember that because I
care for Morgan and the rest of my family, that I must not forget to take care
of myself.
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