Seizures. I absolutely hate the damn things. No matter how
many times you see you kid having one, you NEVER get used to it.
I've been meaning to write about this. But it has been hard
for me. Morgan had some breakthrough seizures. I laid her down to sleep one
night and it happened. Her eyes popped open and she "froze." I kept
talking to her and timed how long it lasted while listening to her irregular
breathing. About a minute. Damn. Damn, damn, damn... I was sad and angry at the
same time. I thought we would have more time than this. I thought, hoped, that
once they were under control, they would stay under control.
I know that we will have to watch for seizures her whole
life, but I've heard of kids with Idic 15 sydrome getting the seizures under
control, then having them perhaps reoccur a few years later - or not at all. I
was hoping she was done with them, at least for a long while. Four months. Four
months seizure free. Not enough time at all. And I wanted more time. She
deserves to have more time to just be,
more time to grow and develop without the constant interference of seizures.
The next morning I was emailing her Neurologist. That night,
more seizures.
A peculiar thing happened though. Our dog Molly is my constant
shadow when putting Morgan to bed. She stays in Morgan's room while I go
through the bedtime routine. Once I lay Morgan in her crib, I turn out the
light and Molly follows me out. This time, she didn't. She stayed in Morgan's
doorway, curled up and laid down. I turned back to see her laying there staring
intently at me. This was not normal behavior for Molly.
Molly is a very lighthearted, timid Border Collie/Heeler
mix. She has always detected when one of us is sick before we are aware of
what's going on. She has done it with me when I've been very sick, she did it
with Danny while he's been sick, and she has done this countless times with
Kyle. She would act agitated or engage in some other abnormal behavior. This laying
in the doorway and staring at me thing was definitely not normal. She never
lays in doorways, and she only stars at me like that when she is trying to get
me to do something.
I stared back for a moment. In that moment I realized two
things. One, Morgan is going to have a seizure, and my heart just sank. Two, at
this moment, I'm not the only one watching her. I'm not alone in this. This
last realization was very comforting to me.
Morgan had two seizures that night. The next day I heard
back from her Neurologist and we were going to increase her meds gradually
beginning that evening.
Now an idea has been planted. The seed has taken root and is
sprouting rapidly. A Seizure Detecting Service Dog. I'm now on a quest. I've
been making inquiries and researching. I don't have any answers yet but I've
connected with a couple other parents across the country who have Seizure
Detecting Service Dogs for their kid who also has Idic 15 Syndrome. I think
Morgan may be a bit young yet, but I intend to get the process started as soon
as possible. It won't be easy, and there will be the question of funding, but I
have to find a way to make it happen. The idea of her having a trained dog
sleeping beside her would allow me to rest better at night. Knowing that
someone other than myself was on watch would take give me a great deal of
comfort. It is exhausting living in a constant state of ultra alertness.
In the meantime, how do I encourage Molly's unique ability?
I don't know why she detected the seizures in this instance and not all the
other times. Maybe they were occurring so frequently before that they seemed
"normal." Maybe, because she has been seizure free for four months,
Molly was able to tell the difference. Whatever the reason, I figure if she did
it once, she can do it again, or at least I hope so.
I was truly hoping that we had seen the last of the
seizures. my greatest wish was for Morgan's seizures to be over and done with.
During the four month respite, I think I convinced myself that we were through
with them. It was disappointing, to say the least, to see her have them again.
Since increasing her meds, I'm happy to say I haven't seen
any further activity. Please let it stay
that way.
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